Anybody have a child with lambdoid craniosynostosis? Our 9 week old son just got that diagnosis yesterday?

after a CT scan. Went in for his 2 month check up expecting to just get vaccines and be on our merry way only to find out his anterior fontanel is closed, which is why the CT was ordered. My son screams most of the time when awake and occasional during his sleep despite using colic tablets and gripe water. He vomits almost continuously despite being on first Zantac then Prevacid 7.5mg twice a day, 9 different formulas (last 1 was Nutramigen, now on Alimentum due to milk, lactose, and soy intolerance-has atopic dermatitis now d/t allergies), thickening with rice cereal per our Pediatrician's recommendation, and keeping him at least a 45* angle at all times, except during diaper changes and tummy-time. Barium swallow study showed no immediate reflux or obstructions. Pediatrician now thinks this may be due to the premature closure of the lambdoid sutures. Have appt with neurosurgeon on Nov 24th - just wondering what to expect and if surgery is usually necessary and if your child screamed and vomited all the time. ANY TIPS OR SUGGESTIONS??? (From what I've researched, it's very rare for this particular suture to close prematurely.)